Hypoplastic Right Hearts
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Tuesday, May 21 2013 @ 11:27 AM EDT

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Thursday 23-May
  • Angel Axel James Meyer's 4th Birthday
  • Angel Axel James Meyer's 4th Angel Anniversary

  • Saturday 25-May
  • Angel Abigail Blankenbaker's 12th Angel Anniversary
  • Raymond Bustamante's 13th Birthday

  • Sunday 26-May
  • Angel Joanie Allen's Birthday

  • Friday 31-May
  • Analicia Delmar-Huse Birthday

  • Hearts Reunited Conference: July 11-13, 2013
    Untitled Document

    Heart ReUnited 3: UCLA, Thursday July 11 - Saturday July 13th, 2013

    1. Make your reservations at the onsite facilities (arrive Wed. the 10th) at the Tiverton House http://tivertonhouse.ucla.edu/
    You can cancel as late as 3:00 pm Pacific time on July 9th, but you can't get a room if they run out! The rate is $139/night but there is no tax because it's a UCLA event. Be sure to tell them you are staying for a UCLA medical school conference. Reservations have already been made by some of the planning committee and it was really easy, but you need to say that to get the $139/night rate.

    * Please make note of sleeping accommodations in the room you are reserving, not all rooms have the same bed space.

    2. Create a First Giving Page for your share of the Hotel bill and conference expenses! Your goal should be $850 to cover all events and hotel. If you can't raise it all, those who raise more will help even it out, but the first $300 goes to food and activities, the next $550 goes to hotel. Here's the fundraising link http://www.firstgiving.com/22303 to get started. Here is my page: http://www.firstgiving.com/fundraiser/amanda-adams-4/adamsfamilyfundraisingpage email me at amandaroseadams@gmail.com if you need help with this part. Airfare and transportation is the responsibility of each individual family, sorry we cannot help with that.

    More to come on family events, conference topics, and all the great things we'll be doing. There will be information for families who haven't had the Fontan yet, who won't have a Fontan and who are well past that and looking forward. As always, family activities will be fun and heartwarming. I cannot tell you how much it means to our kids to know they are not the only ones with scars on their chest or the only brothers and sisters who live in the shadow of a heart hero. Not to mention what it means to the parents! Join us on our tenth anniversary and celebrate how far we've come!

    Also, if anyone is considering attending but wants more information or to talk about the conference further before making a decision, they can email Debra Jorgensen debback@yahoo.com or call her at 619-890-9583.

     

    To download forms, click on links below:

    Hearts United 3 Registration Form

    Hearts United Travel Profile Form



    Hypoplastic Right Heart Syndrome
    Untitled Document


    Hypoplastic right heart syndrome (HRHS) refers to underdevelopment of the right sided structures of the heart. These defects cause inadequate blood flow to the lungs and thus, a blue or cyanotic infant. The major problem is pulmonary valve atresia (absence). This valve normally opens and closes to let blood flow to the pulmonary artery. Secondary problems include a very small (hypoplastic) right ventricle (lower chamber which normally pumps blood to the lungs); a small tricuspid valve (this valve allows blood to flow into the right ventricle) and a small (hypoplastic) pulmonary artery. Also, the blood flow into the coronary arteries may be abnormal causing damage to the heart muscle.

    The infant is born with two connections that help blood flow. These are a foramen ovale (hole between the atria) and patent ductus arteriosus (or PDA, a blood vessel between the aorta and pulmonary artery). As these connections begin to close, the infant becomes critically ill.

    Because the blue blood cannot pass through the right side of the heart to get to the lungs, it crosses into the left atrium and mixes with red blood returning from the lungs. This mixed blood is pumped out of the aorta. The only way in which blood gets to the lungs is through the PDA. The PDA must be maintained open with medicine (PGE1). Surgery is usually performed shortly after starting PGE1 to create an artificial connection (shunt) between the aorta and the pulmonary artery to deliver blood to the lungs.

    © The Heart Institute for Children

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