Emotional Support
The following websites are NOT owned by or affiliated with Hypoplastic Right Hearts. We share them with you as a courtesy, and we cannot guarantee the accuracy of the information or the status of the websites. Sites denoted with *** have provided direct services to our members and are preferred sites. ALWAYS contact your pediatric cardiologist and/or cardio thoracic surgeon/physician when seeking medical advice.
Baby Hearts Press
This site offers a variety of books for the parents, child and siblings of a heart child. There is also an awareness product store and links for more information including bereavement resources and advocacy links.Last visited 3/26/06.
Band-Aids and Blackboards
This site deals with all the issues surrounding going to school with medical special needs. It helps kids, teens and parents deal with the social issues of being “different” It has a talking frog to guide you through the site. Last visited 3/26/06.
Bereaved Parents of the USA
This is a place for parents, grandparents, siblings who have lost a child to go for support, information and resources. The national organization has local chapters and a lending library. There is no fee to join. Last visited 3/26/06.
***California Heart Connection
This is a free California based support group that has events throughout the California area as well as online support for products, services and issues pertaining to CHD. There is a section that has downloadable handouts for parents including, what to ask at doctor’s appointments, insurance company issues and much more. Last visited 3/26/06.
***Care Pages
This free site gives personalized WebPages to families living with medical issues. The sites give families a way to keep in touch while their children are having issues or procedures and to update their progress once they are home. The pages include a photo album and guest book. Last visited 3/26/06.
***Caring Bridge
This free site gives personalized WebPages to families living with medical issues. The sites give families a way to keep in touch while their children are having issues or procedures and to update their progress once they are home. The pages include a photo album and guest book. Last visited 3/26/06.
CHD Families
This online support group is for all types of CHD. It is for any member of a family dealing with CHD and is worldwide. There is a family matching database, photo album and chat function. There is no fee to join but you must register. Last visited 3/26/06.
Child Bereavement Trust
This site is based in the U.K. and is a source of information and support for anyone who is grieving the loss of a loved one. It has a lot of information to educate and promote public awareness as well. Last visited 3/26/06.
Children’s Hospital of Winnipeg
This site has an extensive list of printable handouts that cover a wide variety of emotional issues surrounding CHD both for parents and children. Last visited 3/26/06.
Club of Hearts
This site is a place to read and share stories of lives touched by CHD. It has an extensive photo album section with personal heart stories. There are also sections on CHD facts and a thorough list of CHD links. Last visited 3/26/06.
Compassionate Friends
This is a support network for those who have lost a child, including siblings. It gives people who have been bereft longer a chance to help those who are new to the group and share their experiences. The group also hosts local chapters and many events geared towards remembrance and healing. Last visited 3/26/06.
